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Health+: Empowering Individuals via Unifying Health Data

Sujaya Maiyya, Shantanu Sharma, Avinash Kumar

TL;DR

Health + is presented, a user-centric, multimodal health data management system that empowers individuals (including those with limited technical expertise) to upload, query, and share their data across modalities (e.g., text, images, reports).

Abstract

Managing personal health data is a challenge in today's fragmented and institution-centric healthcare ecosystem. Individuals often lack meaningful control over their medical records, which are scattered across incompatible systems and formats. This vision paper presents Health+, a user-centric, multimodal health data management system that empowers individuals (including those with limited technical expertise) to upload, query, and share their data across modalities (e.g., text, images, reports). Rather than aiming for institutional overhaul, Health+ emphasizes individual agency by providing intuitive interfaces and intelligent recommendations for data access and sharing. At the system level, it tackles the complexity of storing, integrating, and securing heterogeneous health records, ensuring both efficiency and privacy. By unifying multimodal data and prioritizing patients, Health+ lays the foundation for a more connected, interpretable, and user-controlled health information ecosystem.

Health+: Empowering Individuals via Unifying Health Data

TL;DR

Health + is presented, a user-centric, multimodal health data management system that empowers individuals (including those with limited technical expertise) to upload, query, and share their data across modalities (e.g., text, images, reports).

Abstract

Managing personal health data is a challenge in today's fragmented and institution-centric healthcare ecosystem. Individuals often lack meaningful control over their medical records, which are scattered across incompatible systems and formats. This vision paper presents Health+, a user-centric, multimodal health data management system that empowers individuals (including those with limited technical expertise) to upload, query, and share their data across modalities (e.g., text, images, reports). Rather than aiming for institutional overhaul, Health+ emphasizes individual agency by providing intuitive interfaces and intelligent recommendations for data access and sharing. At the system level, it tackles the complexity of storing, integrating, and securing heterogeneous health records, ensuring both efficiency and privacy. By unifying multimodal data and prioritizing patients, Health+ lays the foundation for a more connected, interpretable, and user-controlled health information ecosystem.
Paper Structure (11 sections, 4 figures, 3 tables)

This paper contains 11 sections, 4 figures, 3 tables.

Table of Contents

  1. Introduction
  2. Motivating Use-Case: Lower Back Pain
  3. Our Objectives
  4. Why Now?
  5. Research Directions
  6. Individuals’ Perspective
  7. System Perspective
  8. System Design
  9. Data Ingestion Module
  10. Query Processing Module
  11. Expanding Horizons

Figures (4)

  • Figure 1: Disc herniation treatment process.
  • Figure 2: Views of two different frameworks an individual needs to access for visiting two different healthcare providers
  • Figure 3: Health$^+$ Architecture.
  • Figure 4: Dataflow in Health$^+$ for a medical record with $\langle$Date: 11/24/23, Heart Rate: 90, Cholesterol: 220$\rangle$ and for an X-ray. Inputs and outputs of several components of the data processing module are shown here. The red color represents the output of the data ingester, which is also shown in Example \ref{['sec:system design']}.6, after the update over the corresponding tables shown in Table \ref{['table:threetables']}.